Berryville, AR
Health Management for School Series
Web page 2:
Tourette Syndrome
What is a Tic?
Tics of TS
Etiology
Tic Classification
Impact of TS
Management
Resources
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What is Tourette
Syndrome? Tourette Syndrome (TS) is a disorder characterized by uncontrolled, repetitive motor and vocal tics. Alone, TS does not affect a child’s intelligence. However, some children with TS have accompanying disorders such as learning disabilities, Attention Deficit Hyperactivity Disorder (ADHD), Obsessive-Compulsive Disorder (OCD), Asperger Syndrome, or Anxiety Disorder. As a result, children may need special education services or accommodation plans to help them meet their potential. |
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A tic is an involuntary vocalization or movement affecting specific muscle groups. Many children experience tics, but this does not mean that all children experiencing tics have Tourette Syndrome.
An individual may have a transient (temporary) tic disorder. This type of disorder primarily involves motor tics that last less than 12 months.
An
individual may have a chronic (long-term) tic disorder. This type of
disorder is characterized primarily by motor tics, but tics continue for
greater than 12 months. Sometimes, chronic disorders continue into
adulthood. |
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The
tics associated with Tourette Syndrome include both vocal AND motor tics.
These tics persist throughout a person’s life. In addition, the tics may
become sporadic, increase or decrease in frequency and severity, or change
in character. This unpredictable nature makes diagnosis difficult. |
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Although some tics are the result of injury, illness, or medication, TS is
believed to be inherited. It affects 1 in every 2,500 children. Males are
affected more frequently than females. norepinephrine are the neurotransmitters believed to be affected.
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Classification of Tics in Tourette Syndrome
Tics include VOCAL (phonic) and MOTOR tics that are either SIMPLE or COMPLEX. Over time, tics may change in frequency, severity, or character. This variability is known as “waxing and waning.” Note: Any behavior could represent a complex tic. Thus, diagnosis should be left to a
professional medical care provider and
based on thorough study and observation of the child. |
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Simple Motor
Facial grimacing Eye blinking Shoulder shrugging Head jerking Squinting Eye rolling Mouth opening Lip licking
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Complex Motor
Twirling/tossing hair Pulling at clothing Walking on toes Smelling fingers or other objects Mimicking movement of others (echopraxia) Kicking repeatedly Self-injuring behaviors (i.e., biting, picking at skin) |
Simple Vocal
Throat clearing Grunting Squeaking Sniffing/snorting Humming Whistling Coughing Spitting Yelling/screaming
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Complex Vocal
Animal sounds Changing pitch/volume of voice Stuttering Echoing words of another (echolalia) Repeating one’s own words (papilalia) Uttering obscenities (coprolalia)
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Diagnosis is based on the following criteria:
Both motor and vocal tics are present (although not necessarily at the same time).
Tics occur many times a day, almost daily, OR intermittently for a period of more than one year. During this period, individuals are NOT “tic-free” for more than three (3) consecutive months.
Onset is before the age of 18 years.
The disorder causes marked distress or significant impairment in functioning.
The disorder is NOT the direct result of a head injury, illness, or use of medications or other chemical substances.
Source: American Psychiatric Association (2000)
No
laboratory tests are available for TS. Medical professionals
must rely on a health history and physical examination of the individual. However, input from parents
and teachers is extremely valuable during the assessment process. Because of
the complex nature of TS, referrals to specialists (neurologists, developmental
pediatricians, and psychiatrists) often are necessary.
Some medical care providers may order diagnostic tests (EEG, scans, or blood
tests) to rule out disorders that mimic TS. To learn more about TS, visit the
Tourette Syndrome “Plus” website at:
http://www.tourettesyndrome.net/education/htm
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Rationale: refer students who are experiencing difficulty in the classroom for screening and assessment. Remember – the symptoms of Tourette can wax and wane over time. Hence, a student’s need for school assistance may vary.
Rationale: a significant number of children with TS have learning problems and experience difficulty completing their work. They also may have attention and organization problems. Written work may be of poor quality, and verbal instructions alone may be insufficient for ensuring understanding.
1. After obtaining consent from the child with TS (and parents), educate peers and staff. The child’s physician, the school nurse, and school psychologist can assist in this process. 2. Use a non-judgmental and accepting attitude toward the child. 3. Focus on the student’s strengths and interests when grouping or pairing students for assignments. 4. Notify the student with TS about unexpected events (assemblies, guest speakers, fire drills, etc.) as soon as possible. 5. Praise positive behaviors. 6. Consider incorporating empathy-promoting activities, coping skills, and social skills training in the school curriculum. 7. Set reasonable expectations for the child’s behavior. Remember – punishment for a child’s tics is not appropriate. Punishing a child for symptoms of a medical disorder violates that child’s civil rights!
Rationale: Because stress typically exacerbates tics, tactics that help to alleviate stress can reduce the incidence of tics. For more strategies, visit the website of the Tourette Syndrome Association, Inc. at: http://tsa-usa.org
1. Frequent tics can cause fatigue. A child’s attempts to suppress tics also may be tiring. Thus, the child with TS may need a rest period or between-meal snacks during the regular school day. 2. Provide the child with TS opportunities for physical movement. 3. Provide the child with a safe place to express tics. 4. Monitor for behaviors that threaten the safety of the child, other students, and the school staff. Work with the parents, the physician, the school nurse, and the school psychologist in developing appropriate intervention techniques for those behaviors that are potentially injurious to the student or others. 5. Request information about the child’s medication and potential side effects. Be aware that some medications can impact on the child’s physiological AND cognitive processes. 6. Report changes in behavior, changes in the frequency and intensity of tics, and side effects of medication to the child’s parents and the school nurse.
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Additional Resources on Tourette Syndrome:
The Tourette Syndrome Association, Inc. http://tsa-usa.org Home of Tourette Syndrome Online: http://www.tourette-syndrome.com School Behaviors: http://www.schoolbehavior.com/conditions_ts.htm Tourette Syndrome “Plus:” http://www.tourettesyndrome.net Tourette Spectrum Disorder Association, Inc. http://www.tourettesyndrome.org
References American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Text Revision. Washington, DC: Author
Chamberlain, S.P. (2003). Susan Conners: An educator's observations about living with and educating others about Tourette's syndrome. Intervention in School and Clinic, 39 (2), 99-108.
DeStefano-Lewis, K., & Bear, B.J.
(2002). Manual of school health (2nd ed.). St. Louis: Saunders. Written October 15, 2004 Last update: December 10, 2004 S. Verwey, R.N. Graduate Student Southwest Missouri State University Springfield, MO
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Disclaimer: This page was created for faculty of the Berryville School District for informational purposes only. The information should never be substituted for evaluation and treatment by a qualified medical care provider.
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