Berryville School District

Berryville, AR

Health Management for School Series
 

Web page 2: Tourette Syndrome

What is a Tic?    Tics of TS    Etiology   Tic Classification    Impact of TS    Management    Resources

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What is Tourette Syndrome? 
 

     Tourette Syndrome (TS) is a disorder characterized by uncontrolled, repetitive motor and vocal tics.  Alone, TS does not affect a child’s intelligence.  However, some children with TS have accompanying disorders such as learning disabilities, Attention Deficit Hyperactivity Disorder (ADHD), Obsessive-Compulsive Disorder (OCD), Asperger Syndrome, or Anxiety Disorder.  As a result, children may need special education services or accommodation plans to help them meet their potential.

 

 

 

 

 

What is a tic?

 

     A tic is an involuntary vocalization or movement affecting specific muscle groups.  Many children experience tics, but this does not mean that all children experiencing tics have Tourette Syndrome.

 

     An individual may have a transient (temporary) tic disorder.  This type of disorder primarily involves motor tics that last less than 12 months.

 

     An individual may have a chronic (long-term) tic disorder.  This type of disorder is characterized primarily by motor tics, but tics continue for greater than 12 months.  Sometimes, chronic disorders continue into adulthood.

A tic disorder not meeting the diagnostic criteria for TS, chronic tic disorder, or transient tic disorder may be diagnosed as a “tic disorder not otherwise specified.”  

Note: Transient & chronic tics disorders are NOT synonymous with TS.
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The Tics of Tourette Syndrome

 

     The tics associated with Tourette Syndrome include both vocal AND motor tics.  These tics persist throughout a person’s life.  In addition, the tics may become sporadic, increase or decrease in frequency and severity, or change in character.  This unpredictable nature makes diagnosis difficult.

     For a short audio presentation on Tourette syndrome, click on the following: Audio
 

 

 

   What Causes TS?
 

      Although some tics are the result of injury, illness, or medication, TS is believed to be inherited.  It affects 1 in every 2,500 children.  Males are affected more frequently than females.
     The disorder is thought to be related to abnormalities with the neurotransmitters in the brain.  Dopamine, serotonin, and

 norepinephrine are the neurotransmitters believed to be affected.


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Classification of Tics in Tourette Syndrome

 

Tics include VOCAL (phonic) and MOTOR tics that are either SIMPLE or COMPLEX.

Over time, tics may change in frequency, severity, or character. 

This variability is known as “waxing and waning.”

 Note: Any behavior could represent a complex tic. Thus, diagnosis should be left to a

professional medical care provider and based on thorough study and observation of the child.
 

 

Simple Motor

 

Facial grimacing

Eye blinking

Shoulder shrugging

Head jerking

Squinting

Eye rolling

Mouth opening

Lip licking

 

Complex Motor

 

Twirling/tossing hair

Pulling at clothing

Walking on toes

Smelling fingers or

   other objects

Mimicking movement of others

   (echopraxia)

Kicking repeatedly

Self-injuring behaviors (i.e., biting,

   picking at skin)

Simple Vocal

 

Throat clearing

Grunting

Squeaking

Sniffing/snorting

Humming

Whistling

Coughing

Spitting

Yelling/screaming

 

 

Complex Vocal

 

Animal sounds

Changing pitch/volume

   of voice

Stuttering

Echoing words of

   another (echolalia)

Repeating one’s own

   words (papilalia)

Uttering obscenities

   (coprolalia)

 

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Diagnosis is based on the following criteria:

     No laboratory tests are available for TS.  Medical professionals must rely on a health history and physical examination of the individual.  However, input from parents and teachers is extremely valuable during the assessment process.  Because of the complex nature of TS, referrals to specialists (neurologists, developmental pediatricians, and psychiatrists) often are necessary.
 

Some medical care providers may order diagnostic tests (EEG, scans, or blood tests) to rule out disorders that mimic TS.  To learn more about TS, visit the Tourette Syndrome “Plus” website at: http://www.tourettesyndrome.net/education/htm

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Impact of TS on a Child

 

  • The child (and the parents) may feel guilt, shame, and embarrassment.

  • The child may become self-conscious and develop low self-esteem.

  • Teasing by peers can cause a child with TS to feel rejected and socially isolated. 

  • If tics are severe, they can interfere with learning activities in the classroom.

  • A child’s learning may be affected adversely by avoidance of group activities and class participation.

  • The stigma of TS may lead to strained family relationships.

  • Side effects of medications may impact on the learning process.

  • Certain side effects (drooling/tremors) can be the target of ridicule by peers.

  • The child with TS may follow a complex medication regimen.  Dangerous drug interactions and poor compliance with complex medication regimens are possible.

 

 

Management Strategies for TS

 

  • Students with Tourette Syndrome AND a learning disability should have an Individualized Education Plan (IEP) to address learning needs.   When TS impacts on learning and on the student’s daily functioning, interventions to address the problems should be included in the IEP.  Students who do not qualify for Special Education may qualify for assistance with a 504 Plan.

 

Rationale: refer students who are experiencing difficulty in the classroom for screening and assessment. Remember – the symptoms of Tourette can wax and wane over time.  Hence, a student’s need for school assistance may vary.

 

  • Students with TS who do not qualify for Special Education or a 504 Plan can receive help with a school-initiated action plan.  With this type of plan, teachers, parents, administrators, and school nurses work together to provide the child with help and support. 

 

  • In TS action plans, strategies focus on reducing stress, assessing the quality of the child’s work (not the quantity), eliminating distractions, and facilitating success.  Some of the following academic strategies may be considered:

 

    1. Break down student’s assignments into manageable “chunks” or sections.

    2. Base homework on student’s rate of task completions, especially if the student requires more time to finish assignments.

    3. Use grid paper for writing and mathematics assignments if handwriting is a problem.

    4. Provide oral or computerized assignments if the handwriting problem is severe.

    5. Provide the student with seating near the teacher’s desk so the student can be quickly (and subtly) redirected.

    6. Minimize distractions in the classroom.

    7. Provide student with a workstation in a quiet area if possible.

    8. Create a comfortable, daily routine in your classroom.

    9. Incorporate visual aides, written instructions, and demonstrations into class lessons.

    10. Set reasonable time limits for assignments.  If possible, avoid “timed” tests.

    11. Allow students to test in a quiet area away from others. 
       

Rationale: a significant number of children with TS have learning problems and experience difficulty completing their work. They also may have attention and organization problems.  Written work may be of poor quality, and verbal instructions alone may be insufficient for ensuring understanding.

 

  • The following psychosocial strategies may be considered:
     

1.   After obtaining consent from the child with TS (and parents), educate

     peers and staff.  The child’s physician, the school nurse, and school psychologist can assist in this process.

2.  Use a non-judgmental and accepting attitude toward the child.

3.  Focus on the student’s strengths and interests when grouping or pairing students for assignments.

4.  Notify the student with TS about unexpected events (assemblies, guest speakers, fire drills, etc.) as soon as possible.

5.  Praise positive behaviors.

6.  Consider incorporating empathy-promoting activities, coping skills, and social skills training in the school curriculum.

7. Set reasonable expectations for the child’s behavior. Remember – punishment for a child’s tics is not appropriate.  Punishing a child for symptoms of a medical disorder violates that child’s civil rights!

 

Rationale: Because stress typically exacerbates tics, tactics that help to alleviate stress can reduce the incidence of tics For more strategies, visit the website of the Tourette Syndrome Association, Inc. at: http://tsa-usa.org

 

  • Some of the physiological strategies may be considered with a child with TS:

 

1.   Frequent tics can cause fatigue.  A child’s attempts to suppress tics also may be tiring.  Thus, the child with TS may need a rest period or between-meal snacks during the regular school day.

2.  Provide the child with TS opportunities for physical movement.

3.  Provide the child with a safe place to express tics. 

4.  Monitor for behaviors that threaten the safety of the child, other students, and the school staff.  Work with the parents, the physician, the school nurse, and the school psychologist in developing appropriate intervention techniques for those behaviors that are potentially injurious to the student or others.

5.  Request information about the child’s medication and potential side effects.  Be aware that some medications can impact on the child’s physiological AND cognitive processes.

6.  Report changes in behavior, changes in the frequency and intensity of tics, and side effects of medication to the child’s parents and the school nurse.


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Additional Resources on Tourette Syndrome:

 

The Tourette Syndrome Association, Inc. http://tsa-usa.org

Home of Tourette Syndrome Online: http://www.tourette-syndrome.com

School Behaviors: http://www.schoolbehavior.com/conditions_ts.htm

Tourette Syndrome “Plus:” http://www.tourettesyndrome.net

Tourette Spectrum Disorder Association, Inc. http://www.tourettesyndrome.org

 

 

References
 

American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Text Revision. Washington, DC: Author

 

Chamberlain, S.P. (2003). Susan Conners: An educator's observations about living with and educating others about Tourette's syndrome. Intervention in School and Clinic, 39 (2), 99-108.

DeStefano-Lewis, K., & Bear, B.J. (2002). Manual of school health (2nd ed.). St. Louis: Saunders.

Prestia, K. (2003). Tourette's syndrome: Characteristics and interventions. Intervention in School and Clinic, 39 (2), 67-71.

Schapiro, N.A. (2002). "Dude, you don't have Tourette's:" Tourette's syndrome, beyond the tics. Pediatric Nursing, 22 (3), 243-253.

Written October 15, 2004

Last update:  December 10, 2004

S. Verwey, R.N.

Graduate Student

Southwest Missouri State University

Springfield, MO

 

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Disclaimer: This page was created for faculty of the Berryville School District for informational purposes only.  The information should never be substituted for evaluation and treatment by a qualified medical care provider.